Informing research • Fostering community • Advocating for LC sufferers
The ILLInet PARATROOPers is a group of Long COVID sufferers participating in the RECOVER research initiative. We came together to help the scientists and medical professionals working to understand Long COVID (LC) by informing their research and providing input on the design and implementation of the study and clinical trials based on our lived experience.
Our name
The ILLInet in our name stands for the network of health systems and community-based organizations in Illinois.
The PARATROOPers part of our name is an acronym formed from the phrase PARticipAnT Research wOrk grOuP. We chose this name because we see ourselves as paratroopers on the front lines of the fight to understand, treat, and prevent Long COVID.
You can learn more about the ILLInet RECOVER research initiative to understand, treat, and prevent Long COVID by going to ILLINET.org or following this QR code.
PLEASE card
Read ILLInet PARATROOPer Amy Pope’s heartfelt call to researchers to listen to what Long COVID sufferers have to say. Presented at the second annual RECOVER-TLC workshop, in Bethesda, MD.
Click the button below to download PDFs you can print or post on social media.
The ILLInet PARATROOPers are growing!
If you’re a patient participant in the RECOVER research initiative, click the button below to learn how you can participate in the search for answers to what causes LC and what we can do about it.
PARATROOPers News
The ILLInet PARATROOPers are featured on the NIH website! Click here to read the article titled, “Participant advisory group at RECOVER hub raises awareness about Long COVID.”